<html><body style="word-wrap: break-word; -webkit-nbsp-mode: space; -webkit-line-break: after-white-space; "><div style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><font class="Apple-style-span" color="#00007E"><b>Message from Christopher below, originally got bounced. thanks!</b></font></div><div style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><font class="Apple-style-span" color="#0000007E"><b><br></b></font></div><div style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span style="font-family: Helvetica; font-size: medium; color: rgba(0, 0, 0, 0.498039); "><b>From: </b></span><span style="font-family: Helvetica; font-size: medium; ">Christopher Le Dantec <<a href="mailto:ledantec@cc.gatech.edu">ledantec@cc.gatech.edu</a>><br></span></div><div style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span style="font-family: Helvetica; font-size: medium; color: rgba(0, 0, 0, 0.498039); "><b>Date: </b></span><span style="font-family: Helvetica; font-size: medium; ">27 February 2009 19:19:56 GMT<br></span></div><div style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span style="font-family: Helvetica; font-size: medium; color: rgba(0, 0, 0, 0.498039); "><b>To: </b></span><span style="font-family: Helvetica; font-size: medium; ">For CHI 2009 eHealth Panel Participants <<a href="mailto:ehealth@ecs.soton.ac.uk">ehealth@ecs.soton.ac.uk</a>><br></span></div><div style="margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; "><span style="font-family: Helvetica; font-size: medium; color: rgba(0, 0, 0, 0.498039); "><b>Subject: </b></span><span style="font-family: Helvetica; font-size: medium; "><b>Re: [eHealth] Re: your participation?</b><br></span></div><br><br>i'll jump in with a few thoughts -none of this is terribly coherent so bear with me. first up is an article that was in the nytimes a couple weeks back on disruptive innovation in the healthcare industry as being built around a new business model and the technologies that support it:<br><br><<a href="http://www.nytimes.com/2009/02/01/business/01unbox.html?_r=1&scp=1&sq=disruptive%20innovation&st=cse">http://www.nytimes.com/2009/02/01/business/01unbox.html?_r=1&scp=1&sq=disruptive%20innovation&st=cse</a>><br><br>this, if nothing else, seems like a reasonable popular platform to frame some of the discussion in eHealth as being a blend of new technologies and practices that support wellness. i can see this going directly to Sunny's points 1 and 3 w/r/t moving the business of healthcare away from acute intervention (and managing the risk & cost of those interventions) toward sustained and integrated monitoring to preempt hospital stays and the level of accuracy necessary to help individuals reflect on their health thresholds (if that makes any sense...).<br><br>i also wonder what lessons there are we can take away from CSCW research on technologies that support social services? in the 30 years since Rob Kling started looking at the problem up through my own more recent work it's clear that very little progress has been made. with eHealth i think there are similar challenges bcs it's not just about supporting individuals but about engaging the institutions and the policies as well.<br><br>best,<br>cL<div><br><div><div>On 23 Feb 2009, at 23:07, Consolvo, Sunny wrote:</div><br class="Apple-interchange-newline"><blockquote type="cite"><div>I haven't thought through all of these issues, but some that often occur to me (and I believe would benefit from discussion by the panel) are:<br><br>1 - What are the long-term ramifications of helping people keep electronic records of their health-related information? This can have serious up and down sides, especially since it is so easy for electronic records to be copied and shared. It raises issues such as, how does the individual keep track of who has what information about him/her? Who has control over that information (and in what circumstances)? How can that information be used to help or hurt the individual? (e.g., health insurance is a topic about which I am often asked regarding the physical activity records that UbiFit Garden helps people keep). <br><br>2 - A related thought has to do with our responsibilities as HCI researchers exploring issues with potential long-term impact. We are often dealing with early stage research prototypes that may be bulky and buggy. Even if we want to conduct studies that last several months at a time, the prototypes are often not up to the task (or are not in a form factor that participants would find acceptable to use for extended periods of time). What types of questions should we seek to answer that the community will find useful and that are also amenable to the early stage of the technology?<br><br>3 - Another related thought has to do with the accuracy of the records that our technologies create (or help to create). It has been my experience with numerous commercially available devices to detect physical activity that none is 100% accurate (nor do they detect the range of activities that can contribute to an individual leading a physically active lifestyle; e.g., pedometers do not detect bicycle riding). Most commercial systems do not allow the user to modify these records. To deal in part with this issue, we allowed the user to add to, edit, and delete inferred data in our UbiFit Garden system. While that approach seemed successful, it is also prone to error (e.g., intentional and unintentional misreporting). What are the downsides of these records being inaccurate? What can we do to mitigate those potential problems? (I'm certain these issues apply more broadly to health technologies and are not limited to physical activity).<br><br>Please share your thoughts...<br><br>-Sunny<br><br>-----Original Message-----<br>From: ehealth-bounces@ecs.soton.ac.uk [<a href="mailto:ehealth-bounces@ecs.soton.ac.uk">mailto:ehealth-bounces@ecs.soton.ac.uk</a>] On Behalf Of m.c. schraefel<br>Sent: Saturday, February 21, 2009 7:46 AM<br>To: <a href="mailto:ehealth@ecs.soton.ac.uk">ehealth@ecs.soton.ac.uk</a><br>Subject: [eHealth] your participation?<br><br>Hello panelists,<br>how can i help inspire you to join a discussion in preparation for this panel?<br><br>We're trying to avoid the traditional "please prepare a five minute <br>blurb and open the floor for discussion"<br><br>and get a general discussion and set of topics moving.<br><br>So here's your platform and opportunity to rant a bit with a group <br>who've said they're interested in this topic - nay are quite <br>passionate about issues around access to information from class and <br>regional perspectives and other user positionalities.<br><br>Please feel free to leap in!<br><br>mc<br><br><blockquote type="cite">Some of you folks have kindly taken the time to fill in your areas <br></blockquote><blockquote type="cite">on the wiki for the up coming chi ehealth panel.<br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite">thank you,<br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite">Peter suggested that a mailing list may be an easier way to move <br></blockquote><blockquote type="cite">discussion along.<br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite">Ok then:<br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite">given your experience with health information - online or off - <br></blockquote><blockquote type="cite">looking at how people try to get information or how we try to keep <br></blockquote><blockquote type="cite">track or share that information -<br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite">1) what is one thing about which you might say you were passionate - <br></blockquote><blockquote type="cite">that absolutely has to be discussed at a panel concerned with <br></blockquote><blockquote type="cite">proactive/preventative health support and human usable, human useful <br></blockquote><blockquote type="cite">design?<br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite">2) what have you found that is one take away from any work you have <br></blockquote><blockquote type="cite">done in making health related info systems useful/usable that you <br></blockquote><blockquote type="cite">would like others to know/keep in mind/use?<br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite">With thanks for your time,<br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite">looking forward to the discussion here,<br></blockquote><blockquote type="cite"><br></blockquote><blockquote type="cite">mc<br></blockquote>_______________________________________________<br>eHealth mailing list<br><a href="mailto:eHealth@ecs.soton.ac.uk">eHealth@ecs.soton.ac.uk</a><br>http://mailman.ecs.soton.ac.uk/mailman/listinfo/ehealth<br><br>_______________________________________________<br>eHealth mailing list<br>eHealth@ecs.soton.ac.uk<br>http://mailman.ecs.soton.ac.uk/mailman/listinfo/ehealth<br></div></blockquote></div><br></div></body></html>