[eHealth] Re: your participation?

Fri Feb 27 19:27:43 GMT 2009

Message from Christopher below, originally got bounced. thanks!

From: Christopher Le Dantec <ledantec at cc.gatech.edu>
Date: 27 February 2009 19:19:56 GMT
To: For CHI 2009 eHealth Panel Participants <ehealth at ecs.soton.ac.uk>
Subject: Re: [eHealth] Re: your participation?

i'll jump in with a few thoughts -none of this is terribly coherent so  
bear with me. first up is an article that was in the nytimes a couple  
weeks back on disruptive innovation in the healthcare industry as  
being built around a new business model and the technologies that  
support it:

<http://www.nytimes.com/2009/02/01/business/01unbox.html?_r=1&scp=1&sq=disruptive%20innovation&st=cse 
 >

this, if nothing else, seems like a reasonable popular platform to  
frame some of the discussion in eHealth as being a blend of new  
technologies and practices that support wellness. i can see this going  
directly to Sunny's points 1 and 3 w/r/t moving the business of  
healthcare away from acute intervention (and managing the risk & cost  
of those interventions) toward sustained and integrated monitoring to  
preempt hospital stays and the level of accuracy necessary to help  
individuals reflect on their health thresholds (if that makes any  
sense...).

i also wonder what lessons there are we can take away from CSCW  
research on technologies that  support social services? in the 30  
years since Rob Kling started looking at the problem up through my own  
more recent work it's clear that very little progress has been made.  
with eHealth i think there are similar challenges bcs it's not just  
about supporting individuals but about engaging the institutions and  
the policies as well.

best,
cL

On 23 Feb 2009, at 23:07, Consolvo, Sunny wrote:

> I haven't thought through all of these issues, but some that often  
> occur to me (and I believe would benefit from discussion by the  
> panel) are:
>
> 1 - What are the long-term ramifications of helping people keep  
> electronic records of their health-related information? This can  
> have serious up and down sides, especially since it is so easy for  
> electronic records to be copied and shared. It raises issues such  
> as, how does the individual keep track of who has what information  
> about him/her? Who has control over that information (and in what  
> circumstances)? How can that information be used to help or hurt the  
> individual? (e.g., health insurance is a topic about which I am  
> often asked regarding the physical activity records that UbiFit  
> Garden helps people keep).
>
> 2 - A related thought has to do with our responsibilities as HCI  
> researchers exploring issues with potential long-term impact. We are  
> often dealing with early stage research prototypes that may be bulky  
> and buggy. Even if we want to conduct studies that last several  
> months at a time, the prototypes are often not up to the task (or  
> are not in a form factor that participants would find acceptable to  
> use for extended periods of time). What types of questions should we  
> seek to answer that the community will find useful and that are also  
> amenable to the early stage of the technology?
>
> 3 - Another related thought has to do with the accuracy of the  
> records that our technologies create (or help to create). It has  
> been my experience with numerous commercially available devices to  
> detect physical activity that none is 100% accurate (nor do they  
> detect the range of activities that can contribute to an individual  
> leading a physically active lifestyle; e.g., pedometers do not  
> detect bicycle riding). Most commercial systems do not allow the  
> user to modify these records. To deal in part with this issue, we  
> allowed the user to add to, edit, and delete inferred data in our  
> UbiFit Garden system. While that approach seemed successful, it is  
> also prone to error (e.g., intentional and unintentional  
> misreporting). What are the downsides of these records being  
> inaccurate? What can we do to mitigate those potential problems?  
> (I'm certain these issues apply more broadly to health technologies  
> and are not limited to physical activity).
>
> Please share your thoughts...
>
> -Sunny
>
> -----Original Message-----
> From: ehealth-bounces at ecs.soton.ac.uk [mailto:ehealth-bounces at ecs.soton.ac.uk 
> ] On Behalf Of m.c. schraefel
> Sent: Saturday, February 21, 2009 7:46 AM
> To: ehealth at ecs.soton.ac.uk
> Subject: [eHealth] your participation?
>
> Hello panelists,
> how can i help inspire you to join a discussion in preparation for  
> this panel?
>
> We're trying to avoid the traditional "please prepare a five minute
> blurb and open the floor for discussion"
>
> and get a general discussion and set of topics moving.
>
> So here's your platform and opportunity to rant a bit with a group
> who've said they're interested in this topic - nay are quite
> passionate about issues around access to information from class and
> regional perspectives and other user positionalities.
>
> Please feel free to leap in!
>
> mc
>
>> Some of you folks have kindly taken the time to fill in your areas
>> on the wiki for the up coming chi ehealth panel.
>>
>> thank you,
>>
>> Peter suggested that a mailing list may be an easier way to move
>> discussion along.
>>
>> Ok then:
>>
>> given your experience with health information - online or off -
>> looking at how people try to get information or how we try to keep
>> track or share that information -
>>
>> 1) what is one thing about which you might say you were passionate -
>> that absolutely has to be discussed at a panel concerned with
>> proactive/preventative health support and human usable, human useful
>> design?
>>
>>
>> 2) what have you found that is one take away from any work you have
>> done in making health related info systems useful/usable that you
>> would like others to know/keep in mind/use?
>>
>> With thanks for your time,
>>
>> looking forward to the discussion here,
>>
>> mc
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